Forward (posted: april 2003)
Summary: Mapping out a short-term plan can help patients with unexpected results avoid getting overly anxious or overwhelmed.

Phase 1: Getting your bearings and treating urgent complications (posted: april 2003)
Summary: The first three goals are understanding broadly what sort of problems you are experiencing; making sure you are getting appropriate care; and starting good record-keeping practices.

Phase 2: Dealing with near-term practical needs (posted: april 2003)
Summary: The next three goals are maximising temporary relief for vision problems, pain and anxiety; planning how to meet practical needs in the coming weeks; and starting to educate yourself.

Phase 3: Understanding and strategising for long-term complications management (posted: april 2003)
Summary: The final three goals are diagnosis for long-term problems; learning about treatment options and weighing risks and benefits; and adjusting routines and lifestyle to meet your needs.